March

Spring is here!! Someone forgot to tell the weather that... but oh well at least the we have more daylight. This past week was spring break. I don't know how I survived. It is a tough age difference right now with some kids (and mom) needing naps and a certain preschooler being unable to keep quiet. There were some sweet moments of sibling play in there somewhere... but my ears are still ringing from all the screaming and fighting. 

We are doing just fine. Nothing exciting going on. Evan is walking all over the place and is up to his usual shenanigans. Ezra is busy telling me "me do it" pretty much about everything. And Eve is loving school and trying to be helpful.

The human body is AMAZING!!

 The other night I was looking at hemophilia blogs and came across a picture of a boy that has hemophilia and has inhibitors. Inhibitors are tricky little devils and a word I fear hearing from our doctors. When you have inhibitors your body attacks the factor you administer... making it much trickier to treat bleeds. Well anyways this boy has a lot of bruising... and some of the bruises are not from anything you would expect to cause a bruise... one of his bruises was from the belt on his five point car seat harness. Not from a wreck in it but just from being in it on a normal car ride.
All I could think of when I saw that picture was how fragile our bodies are and how busy our bodies are activating the clotting cascade every day. This is not something I thought about EVER before our little journey into the world where clotting cascades simply aren't able to do what they need to do. Seeing all these bruises on my little boys, especially the bruising they got prior to prophy, just makes me realize just how often that cascade is working. And this is just one tiny part of how our bodies take care of us... don't even get me started on what I learned about our bodies from talking to a mom who has a daughter with cystic fibrosis. I am just amazed and thankful for our bodies and the amazing things they can do...

Comprehensive Clinic

We got back last night from our trip to Seattle for a comprehensive clinic for the boys. Good news is they look good. Both boys have full range of motion in their joints. Hooray!! They also think since we haven't had any breakthrough bleeding on Ezra we can try to back off to 3 times a week and see if that works for him. The fewer pokes the better for that guy... as long as he doesn't have any bleeding. So now both boys will be on the same prophy schedule. Hopefully that is easier to keep track of. Otherwise I guess we are doing the best we can and the boys are doing really well so a big pat on the back for the parents.

We had the worst time getting our travel approved to go to Seattle. It was just the weirdest combination of things that made it horrible. First off getting the appointment scheduled early was easier said than done. This month was the first comprehensive clinic that our clinic has done so it took them longer than normal to get it all set up. Then insurance thought that one parent was plenty for both boys... after all the only time they were scheduled to be in two places at the same time was when they were being infused... no need for a second parent then. Even though they were in the same place at the same time we had two providers in the room at once each asking questions... so one parent handled one provider while one parent took the other one. It was super wild and crazy!! Anyways back to the craziness of getting our travel approved... Ian did some major work to get it all together. He spent a ton of time on the phone finding out what the hold up was and making sure the right people got all of their stuff. In the end a letter of medical necessity was what got both of us approved to travel. It was an anxious couple of days around our house leading up to our visit not knowing if we would even be able to go to our appointment. Luckily Ian is persistent and patient.