So my favorite picture is the bottom right one... I call this Ezra's hospital clubbing look. The little tank was made out of mesh to keep him off his tubing. He ran around in a diaper and clubbing tank with his bunny slippers pretty much the entire time we were in the hospital... it just makes me laugh.
We did have a little drama Tuesday night. The little cap on the line for needles to insert into the line popped off... notice on the picture above that this is before the clamp... so blood started pouring out. Of course we weren't even at the hotel we were in Old Navy. Ian figured the best solution was to put the cap back on even though it wasn't sterile because otherwise he would be bleeding like crazy. I thought it was a pretty good solution... I am sure someone else would have done something else but it sure worked for us. We had to bring him to the ER because we knew there was a chance of infection. They drew blood to try to see if they could grow anything. They took out that line and put a new line in and flushed the blood out of his port. What craziness!!
After that on Wednesday morning we were totally off our game. We forgot to bring factor to his appointment... luckily the hospital pharmacy had some in stock. Ezra was so good during that infusion and when they pulled the line. He was happy to be able to bathe... and man I was happy he could because he stunk so bad!! Little sponge baths just don't to the trick on a messy toddler.
We are so happy to be home. Ezra was so happy to see Eve and Eve was so happy to see Ezra. It was just too sweet!

Pictures later...

We have survived the port surgery!! I think it was harder on the parents than it was on Ezra. He did so well. They took him back for surgery and it wasn't even crying about it. Then we didn't get to see him until about 2 hours later... the surgery didn't take that long but getting an IV before surgery and the time in the recovery room added onto that. After his surgery the surgeon talked to us. She said it went well... it took a few pokes to get an IV in his veins even after giving him a little gas to put him out. Sadly that was a little relief because it meant that we were really getting the port for a good reason and it made me feel like it wasn't just because we live in the middle of nowhere and doesn't mean that the nurses are horrible in Ketchikan.
He came to his room snuggled up on some male nurse looking so adorable. After a little rest he was up and running around. We couldn't keep him in the room, he was flirting with the nurses and running around the halls.
We got released from the hospital Friday with his port accessed. They taught us how to infuse and we are just hanging around Seattle waiting until Wednesday when they pull the needle out and he will have no strings to worry about. I am so happy about the infusion... it was so much nicer than a hospital visit... and it was so great to do it and then go on with our day. I am excited to learn how to access his port and move to always being able to do it at home... I mean it is scary to think about poking my squirmy toddler... but way better to have some freedom.

Who wouldn't want another gorgeous boy like this?

It's a....

BOY! So it's exciting... but scary at the same time. I was so hoping for a girl so I would worry a little less... but life is what it is. The ultrasound tech gave me a cd of pics... but my computer says it's empty... I may have to go back to get those pics for real...
So now we have to think of a boy name. Ezra is going to love having a brother!
When my little sister was born my brother wanted my mom to take her back and trade her for a boy... Eve might feel that way about this one... but at least she gets to be the only princess in our house. I don't know quite how I am going to survive two boys... but I know I will. I just really hope that this boy doesn't have hemophilia.... can't life give me a little break?

Wild Ride

It is crazy how you get used to things being "normal." I mean taking Ezra in for a head bump didn't seem like a big deal. Then when I mentioned to the doctor that I was worried about his ankle she didn't seem to concerned so I thought maybe I was just crazy but I least I mentioned it. Tuesday morning that ankle problem was a serious problem. The doctor had called about setting up a trip down to Seattle for port placement... and by the way go to the ER for factor because it sounds like he had a joint bleed which is now rebleeding. AWESOME.... not. This was the worst visit of all. Not that the doctors and nurses weren't awesome, but the IV gods just really pooped on us yesterday. We were there for SEVEN, that is right SEVEN hours and had exhausted pretty much all of the staff that was willing to poke my little bleeder. So finally this awesome nurse from the ICU came in and saved the day... I guess the 12th time is the charm. After that there was a possibility that we would have treat many times to stop the joint bleed so they left the IV in.
We followed up today and they determined that we didn't have to treat again. They thought about keeping the IV in another day but Ezra was already getting at it... and it was a difficult spot to protect... the side of his foot... and he wanted to continue to walk. So they pulled it out and man he is one happy guy.
So now the idea of a port is not a long ways off, but in the very near future. Scary and exciting all at the same time. It will be great for Ezra not have to be poked 12 times again...

Hospital

So yesterday Ezra was playing with Eve and hit his head. I was in the other room and didn't see what exactly happened. All I could get out of Eve is that Ezra hit his head and that he didn't want her to snuggle him to make him feel better. He had a few little marks on his head and a pretty good purple line down his forehead like he probably hit it on the corner of something. We called the hemo nurse and she said since we didn't see it happen we should probably treat just to be safe.
The hospital was okay. Ezra was happy right up to the time that the nurse tried to poke him. Then it was all over and he screamed bloody murder. The first poke was unsuccessful, makes me feel so bad for the little guy and also the poor nurse trying to get a good shot and my wiggly man's little veins. By the time it was over we had four nurses in the room. Two of them were holding a little animal show behind my back while I held Ezra; one of them was holding his sippy cup for him since his IV was in his little hand, and the other one was pushing his factor.
Ezra really knows how to put on a show. When they were getting him ready to go after the fact he held out his bandaged hand to the nurse with the most pathetic look on his face. It was like he was saying "look at what you did to me... the least you could do is give me a kiss." One of the nurses brought in this adorable stuffed lion for him. He really had those ladies wrapped around his little finger.

Dance party!!

After dinner tonight we were having family dance time... which was so cute. While we were dancing around I saw Ez try to spin for the first time (Ian said he was doing it all day yesterday) and I was so determined to get video of it because it was just plain adorable. I love the way he lifts his shoulder right before he spins... too cute!! Eve was so happy to have someone to dance around the living room with her.